I’m just finally sitting down to my computer for today.
I spent the day doing normal things. Garage saling. Grocery shopping. Picking out some paint. Buying a pair of pants (I really need to lay off the Dr. Pepper…), just to detail a few errands. Very normal things.
Five years ago was oh-so-different. “Normal” was a distant thing, something I dreamt of but worried would never be part of my life again. For eight months, I’d lived in a hospital room, sleeping mostly on small pull out couches or, more often, pull out chairs beside my daughter’s hospital bed. I’d relocated my whole life there. I had a “desk” set up to work from there as much as possible so she could continue to have insurance. I as much as ignored my other children much to my hindsight regret. I manically bought her clothes, hoping, believing, that she would make it home to wear them. But normal? Oh, something so sweet, so taken for granted–I just wasn’t sure it existed anymore.
Five years ago, as I type, we were getting a ray of hope. A glimpse that just maybe, someday, we could experience some version of a new normal.
Annabelle’s new heart was arriving. I remember specifically because it was around 7pm that they called us, telling us that she was prepped and ready to receive the heart, and the heart was almost there.
And even though I tried REALLY hard not to think of it, lest I completely have a nervous breakdown, a small part of my heart wept. Wept at the realization that my daughter was having a chance at “normal” while another family was having that ripped away from them. Their lives would really, truly never be the same. They were experiencing what I had nightmares of for 8 very long months. A reality that I lived in as a possibility every single day of Annabelle’s life. That my child would die.
Five years later, I look at my sweet girl. Life is not perfect. Goodness, is it ever?!? The road has not always been an easy one, but goodness, is it EVER? But my beautiful daughter— oh I am so thankful.
So thankful for a family who gave a precious gift in their time that their world was being wrecked. That they allowed a sweet little girl (Oh, sorry, BIG GIRL, as Annabelle so often corrects me lately!) to live.
This sweet girl loves all things Hello Kitty and pawprints. She is an amazing singer and even though you don’t always understand the words, the melody is almost always 100% spot on. (Her aide at school told me she was singing a Chris Tomlin song while she was swinging the other day.) She loves smiles and giggles and being silly. She LOVES playing with her big sisters and (mostly) loves playing with her doggy Hope. (Hope is big and sometimes overwhelming!)
She loves pizza and spinach and goldfish and dipping everything in sight in either ranch or ketchup. She’s come from not eating a thing one year and being fed via a tube to eating everything she get her hands on with gusto.
She is not perfect. Sometimes her sillies come out when they should stay in our pockets for silly time. Sometimes she screams when she should talk nicely. Sometimes she throws a fit when she doesn’t get what she wants. She has some really big fears that we are trying to tackle as gently as possible, not the least of them are “pokie pokies” that she has to get WAY to often.
So today, we celebrate Annabelle. We celebrate a God who has brought beauty out of great sorrow. A God who knows the pain of losing a child because he lost one too. And we celebrate the gift of “normal” days. May we never look at a normal day and frown that it isn’t as great and fabulous and adventure filled as others.
Because even normal days are great gifts.
Gifts to be treasured, because they are not always promised, or guaranteed.
Happy “normal” Heart Day, sweet Annabelle. Your mother loves you more than the very breath I breathe.
And to a family out here who is grieving today, please know that a part of my heart will always ache with you. I will never forget the gift you chose that day, and continually pray for you all.
|First Family Picture! (Look, she liked Hello Kitty even then!!)|
|Sweet Nurse Jessica made her a heart necklace to wear!!|
|The traditional “wagon ride” around the pod with “it’s my heart day” signs!|
|Mommy and sweet Annabelle. This picture is a good reminder of just how sick she was. :-/|
|All goals changed this day!!!!|
|Post op. She looked so sad… yet so pink!|
|2016 — NORMAL Day. Momma’s hair is a mess. Annabelle is in pawprint pajamas (she got new today on her special day) and big smiles by all! SO VERY THANKFUL!!!!|
so glad your story has a happy outcome and you are getting back to normal x
5 years. I remember finding your post the weekend I went to my first Acfw conference. Krista I have laughed and cried at every milestone this sweet girl has made. So Happy Birthday princess Annabelle. I know it's truly not a birthday but it is in my book. When she got her heart she got a second birthday. Love to you both
Krista ,I have followed your blog for 5 years and have prayed for Annabelle…..so thankful for answered prayer and thankful she is doing good! If I could ask you a favor…. a co workers grandson had his fontan surgery 2 days ago and today his kidneys and liver are shutting down….they are at the cath lab now…praying they can figure out how they can help his organs…..His name is Wyatt and his mom has a Facebook page called warrior Wyatt hlhs ….if you could say a prayer for Wyatt, he is 2 years old. I know you have been through so much with Annabelle and if anyone understands what they are going through it is you….God bless
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