We had the oxygen supply company come out the other day to look at our pulsox machine. It worked fine while they were here, OF COURSE.
But I was confident enough that she was doing BETTER than what the machine said (given our SAT’s at the Dr office of 97 while the machine said 91) that we let her go for a little trial off oxygen yesterday.
My plan was just to do an hour, but she was doing SO GREAT, we kept her off for over FIVE HOURS!
I put it back on not long before bed time.
So this morning, I turned it back off. So far, she is satting between 92 and 95, which is just fine for her!
Can we make it a whole day without oxygen??? Check back in tomorrow to see results!
(oh, and THANKS yesterday for those who voted! We’re up to 98! WOOHOO!)
In other fun news, it is BIRTHDAY month for a few of my favorite heart babies! (Okay, I’ll be honest, heart babies are near and dear to my heart so they are ALL my favorite, but these three I actually know when their birthday’s are!!)
Anna Reese turned one YESTERDAY! Happy Belated Birthday sweet little princess love!! She is at home doing FABULOUS, and her momma even let me know that she started to COO yesterday, something Anna Reese has never done since she’s had her paralyzed vocal chord! A voice coming back on her birthday… now I think that is a FANTASTIC present! (the above picture was in July,when Annabelle and Anna Reese were next door in the ICU together. Annabelle was getting ready to go upstairs, and Anna Reese was close to going home. They loved being next door to each other and saying hi!!! I made the pic a little bigger, as their facial expressions were HILARIOUS!)
Baby Bowen is turning one TODAY! Happy sweet birthday little man!! You’ve done an AMAZING job and are such a little heart warrior for Jesus!
And Baby James. Baby James was Anna Reese and Annabelle’s heart friend at Vanderbilt. The three of them (or should I say, us three momma’s) were really close and leaned a LOT on each other during those super hard months of fighting for the lives of our babies. Baby James was born on September 13, 2010, and went into the arms of Jesus in December, just shy of his 3 month birthday. But I celebrate the LIFE he DID live this month, celebrate his memory.
And then I’m reminded this month, of a little baby girl (Scarlet) in California, waiting for a heart like Annabelle did, however her time of waiting is dwindling, and without a new heart (or a miracle of God, which I NEVER discount!) she won’t make it much longer. Please pray that God’s hand would be on this family, that His will WILL be done, and for possible donor families. We don’t pray that another life be taken. However, we do pray if a potential family does come available, that they could make a very difficult choice to give life out of their suffering and loss. It is so very hard, but God knows. He really does.
Love to you all!!!