Annabelle had an okay night. She’s still needing pain meds super
regular, every 4 hours on the dot, if not every 3 1/2 hours. For a while
she was screaming when she hit that point, now she just lays in her crib
moaning and groaning. It is awful!!! And she won’t let me hold her to
make her better… she’s in a “don’t touch me” mode at the moment.
🙁 They’re looking to see if they can increase her pain med dose… I think they
gave her a smaller dose because they assumed given her history, she’d be
slightly more pain tolerant than most kids. So they’re looking at
increasing the dose a little so she’s not getting in pain quite so
Our goal is to go home today, but I’m not 100%
sure that is going to happen. She is still on oxygen. We can wean it
off most likely, but when she gets to hurting or coughing, she dips
quite low. And there was a period last night that she was staying high
80’s so we had to go back up on her oxygen quite a bit.
also has decided that when she cries, she should hold her breath. She
then turns smurf-like and hits her low 80’s/high 70’s for a moment, then
pops right back up. It doesn’t last long, but while Mommy LOVED her
smurf Annabelle back in her half-heart days… she really wants to take a
PINK Annabelle home!
She also threw up her feed last
night. A lot. This could be a mixture of anesthesia and the fact that
they skipped her Ranididine yesterday morning, but the doctors do NOT
like puking after tonsils are out as it increases risk of bleeding. They
said they may start her on Zofran to see if that helps her tolerate for
Today’s Prayer Requests:
- That we can manage Annabelle’s pain well
- Handles feeds, and that Mommy can figure out the best “way” to
feed her. She’s had such issues with GI things in the
past and we’d finally gotten into a pattern that works for her, both
physically and developmentally. I’m realizing it might take some
work/time to get her back to her handling our old “schedule.” And
friends, this is NOT AN EASY TASK!
- That we can wean OFF oxygen ASAP
- That we can go HOME… (I do NOT want to stay another day… I
really really really really don’t, but I don’t want to take her home
before she’s ready either. *sigh*)
- A prayer or two for a sleep deprived Momma is appreciated too.
This feels like a bit of a downer update… it isn’t all bad though. She’s starting to be more alert when medicated instead of sleeping the whole time. She’s playing with some toys this morning, which makes Momma’s heart feel good! And she’s enjoying watching cartoons when last night she’d just glared at the TV when it was on while she was awake. I’m seeing “Annabelle” in those eyes now instead of a groggy, hurting little girl.
|Yeah, I’m cool… saggin’ my really big pants… (they really need pink shirts here though… this blue stuff is for boys… and smurfs!)|
|Just out of surgery… the only time she’s snuggled with me! However, she was doped up on some pretty MAJOR pain meds…|
|Snuggling with her dolly but still pretty out of it.|
|Dressed and pretty blankets… but NOT PLEASED. This was most all of our day yesterday…|
|Annabelle: I just threw up… don’t judge.|
|This made my heart feel good. I cried. One handed… she played with her toy and even “chewed”, her favorite thing to do! It was the first glimpse of my Annabelle I had… at 11:30 last night right after she threw up;-)|