The cardiologist said about one out of every 400 to 500 people have heart arrythmia problems. Usually these are inherent in the heart, a congenital heart defect in itself, but you don’t see it until that person is usually in their teens and complain of a rapid heart beat. It is easily treated with medication, and many times fixed with a procedure during a heart cath.
The heart Annabelle received was evidently one of those! They were able to duplicate the arrythmia in the pacing study.
*Sometimes* when it occurs in an infant, they will outgrow it within 6 to 12 months of life. But since the heart she received was from a precious child much older than one, it is their best guess at this point that she would potentially have problems.
What they don’t know, though, is when. It could be that surgery last week spurred the incident and she wouldn’t have an issue until much later in life, but because she is so little, she has no way to “tell” us that her heart is fluttering fast. And if she has long incidents of this abnormal rhythm, it could damage her heart.
Right now, their suggestion is to change one of her meds for blood pressure to another blood pressure medicine that should prevent her heart from having abnormal rhythms. Someday down the line, in a heart cath, they can do the procedure to prevent them from occurring in the future. A simple enough fix, but still scary.
They made the change to her meds today, and will redo the pacing study on Friday to make sure the medicine works for her.
We still may be able to go home on Friday, but her electrolytes still aren’t as stable as they need to be, neither is her anti-rejection med level, so home is a moving target.
On a FUN note today:
Annabelle got a fun package today… from Larry the Cucumber! She was so excited (even though she looks like Miss SoberGus in the picture…she was mad at me for interrupting her Veggietale movie!) It came via another heart transplant friend, who is friends with Larry! Her movies were even Larry Autographed. I’m pretty sure I saw Annabelle swoon when she saw it… Who needs a Justin Bieber crush when you have a Larry one!