But they are still VERY concerned about her, as she has a moderate to severe leaky valve in her heart. The fear is that the leak is making blood back up into her lungs, this creating high pressures, which prevents us from having our Glenn.
What the surgeon WANTED to do was try to wait until Spring, hoping that she would grow bigger, and the pressures would decrease. But her heart is having serious issues functioning well with such a large leak. Her liver is distended, which is a very bad sign, and not to mention we are still having occasional fevers and bloody stool.
Still, they feel comfortable enough for us to go home for a while. It might only be a week. It might be a month. But at the moment, the feeling is that soon she will have to come back in and have yet ANOTHER heart surgery to fix her leaky valve sometime in January. And this still, probably, will NOT be her Glenn. That depends greatly upon the pressures in her heart.
They would do the leaky valve fix now… but the surgeon wants her to grow a little bit, as her heart tissue is VERY delicate, and as she grows, it toughens it up, making it better tissue to stitch up I guess.
I know this is all complicated… and probably too much information… but long story short, we are going home, but we have NO idea for how long. And now we have 2 heart surgeries to prepare for in the next few months, vs. one. *sigh* That is overwhelming to think about, but I’m not going there right now.
I’m just thanking God for our CHRISTMAS MIRACLE!!!
PLEASE pray that we have a very UNEVENTFUL weekend! I gotta tell you, they trained Scott and I on CPR, and it scared the crap out of me. Mostly because I know there’s a decent chance we might have to use it on her someday, and knowing she’s had chest compressions at least 4 times in the past to save her life. It made me really stop and grasp the reality of it all.
GOD IS AWESOME THOUGH, and has brought us through thus far. We are believing in GOOD things for our Annabelle, and look forward to a happy, family-filled Christmas, celebrating the birth of our WONDERFUL Savior!
I can not WAIT to post our coming home pictures for you guys!! Not sure if I’ll have time tomorrow with everything… but I WILL sometime this weekend!
–krista…. skipping away to actually EAT my lunch while doing the snoopy happy dance!