Annabelle got extubated yesterday! Around 3:30, after we had finally gotten her awake a little from all her sedation. We spent the morning trying to wean her enough so she was good and alert to breathe well on her own.
Extubation went well, had a little squeekiness so they had to do a breathing treatment right away.
And I got to hold her a few hours later!!!!
Holding her was a HUGE chore and I think it really hurt her to move out of the bed. Not to mention the fact she has 2 chest tubes, an IV, an ART line, a CVP line (with a ton of meds going into it), a catheter, a temp probe, a Gtube, her vapotherm, her leads, o2 brain monitors (not sure what these are called…) and her pacing wires… yeah, it was a tangled mess and not simple. We decided it’s probably best not to hold her for another day or two.
Please keep Annabelle in your prayers still though. Even though we extubated, breathing isn’t coming simply for her. She sounds really weasy, is moving weak air, and just having a hard time overall. We weaned her vapotherm from a rate of 15 to 12 yesterday and she did okay with that, but again overnight to rate of 10 and we just had to go back up. She’s had some questionable blood gasses, and we just seem to be chasing her numbers all the way around.
They suctioning out her lungs as I type, trying to get some gunk out of there so she can breathe better. This is all just WAY too familiar to previously (failed) extubations.
Momma slept in the back of her room, waking up off and on, the last two nights. Sleepy doesn’t begin to describe it. Daddy slept at the Ronald McDonald house yesterday night, but last night he stayed up in the chair, since it seemed like a never ending flow of doctors kept coming into the room to check her out, and he didn’t feel comfortable leaving. Not great since he’s supposed to go to work tonight and I’m sure he is exhausted! But both of us were just too nervous to leave her.
So yeah, please just continue to pray, that Annabelle can take deep, satisfying breathes, that her numbers will be stable and normal, and that she can cough up any gunk that is in that, and that she STAYS OFF THE VENTILATOR!
Just talked to the nurse. Evidently her CRP number was elevated during the night too (like, elevated really HIGH) which is a big sign of infection. They’ve sent blood cultures and urine cultures to check. Please pray for this as well!!!! Obviously an infection would be not a good thing right now either!
I’m trying not to fret… Scott and I have switched chairs so he can sleep a little… I just gonna stay up a bit and pray and just, well, probably worry, but I think God understands that too! He had a son as well who went through a lot of pain, and I’m SURE it wasn’t pleasant for Him to watch either.
Finally awake and bright eyed! THIS is my Annabelle!
Blurry pic of me holding her… but showing all of her mess of wires/tubes! A LITTLE overwhelming for even this momma, who is pretty used to tubes and wires by now!
A nicer picture of me and Annabelle…
She’s looking at her mobile!!! LOVES her lady bugs and flowers:-)