kristaphillips Doctors rounded this morning. The concessus is that she isn’t tolerating her current heart structure well and needs her Glenn (the 2nd heart surgery) sooner than later.
They do not like to do it before 3 months of age, and usually shoot for 4 months. Annabelle is currently 2 months and 10 days old. However, since she keeps having these episodes, there may not be a choice. They are going to verify with the surgeon that he agrees with this direction, and potentially do a heart cath tomorrow or early next week. At that time, the plan is to schedule her Glenn surgery, which I think they do pretty quickly after the Cath, maybe within the week.
I was really nervous at the thought of doing the Glenn so early in 3 weeks. But now, doing it next week, I’m overwhelmed to be honest. Part of me is scared because it is SO early, but another part of me is hopeful that we’ll be able to bring her home sooner. Really, I just want my baby better. If I never hear the word “compression” again, I’ll be so very happy.
Also, they are most likely going to keep her on her ventilator now until her surgery, unless they change their minds and postpone it for weeks. Which means no more holding her. THey’ll probably let me hold her before surgery like they did last time, but… I would have snuggled a LOT more yesterday if I’d have known! Oh, those coulda-shoulda-woulda’s…
Anyway, that is the update for the day. I’ll post again when they schedule her heart cath.
-krista
OH! On Tuesday, we had my cousin and sister-in-law come and take pictures of Annabelle. SO SO SO happy we did that and didn’t put it off longer!!!! They did a WONDERFUL job! Photographing a baby in the hospital with so many wires and tubes is not an easy task!
Holding you both in my heart. Those pictures are AWESOME and much needed. You will always cherish them so much.
Beautiful girl.
What super sweet pictures! Thank you for sharing them!
Thinking of and praying for you all.
Hugs and blessings,
Karen
Those are beautiful pictures, Krista!
I'll be keeping you all in my prayers this week. I understand how hugely overwhelming this is. Know that you have a legion of believers in line with you, lifting Annabelle up in our prayers. 🙂
Ooooo, those pictures are priceless! What a treasure, indeed. I am praying that God holds sweet Annabelle throughout these next few days and weeks. To keep her strong, to give wisdom to the doctors, and to minister peace to you and your family. LOve you!!!! (((HUG)))
Gorgeous picture, Krista! She is such a little beauty : )
I am praying so very hard for you, your family, and Annabelle. So many people are holding you all in their hearts. You can get through this!
Hannah
Hi Krista –
She's so beautiful!
Praying that all goes well for little Miss Annabelle.
Hugs,
Susan
*heart melts* she's so beautiful! I'm still praying. Our God is Bigger than we even know.
She is so, so, so beautiful, Krista. I will keep praying for you, Annabelle and your family.
The pics are beautiful and I'll be sure to pray for Annabelle's surgery.
I came over from Katie Ganshert's blog. the photos of your precious girl are gorgeous – she is truly beautiful. I will be praying for her and for your family.
Still praying for y'all and sending our love!!!
I love that little girl! And you. Praying and believing for healing, even as I sniffle.
Love
Jen
Ohhh–her pictures are perfect! I'm so glad she was able to do them for you. I will be praying about this surgery. You have gone through so much!
Krista, what a sweet baby! I'll be praying! Glad to get to know you through the Writers Alley!
Angie
This photos are amazing…as are you and Annabelle.
Thank you for sharing.
Keep us updated.
Patti
The pictures are absolutely GORGEOUS. Anabelle is in our prayers!!