Annabelle is on the floor AGAIN for the THIRD time since transplant! Fun that it came on the one-month anniversary of her getting her heart! GOOD timing!
I’m praying really hard this is the “one.” The last trip up from the PICU. The last step before going HOME.
I think it is this time. I really do. All day yesterday, I felt hope. Bringing her multiple carts full of stuff up here, I couldn’t wipe the big grin off my face. She has a new heart, is breathing well, and her diaphragm is fixed. There isn’t much of anything else to “do” to make her breathe better, other than let her have time to “grow” which we hope to be able to do at HOME.
We hope to get her last chest tube out today.
Going to ask about her swallow study which we’ve been waiting to do until she has a stable respiratory status. Since she’s finally stable…. maybe soon?
She’s on a 1/3 of a liter of oxygen. She didn’t quite like a 1/4th yet (we’ve tried twice…), but we’re below a half for the first time in a long time!
Oh, and a PRAISE for Miss Anna Reese, Annabelle’s friend that I’ve asked you to pray for in the past. She is doing WELL, and hopefully will come to the floor sometime this week too (maybe today?!?) She still need lots more strength in her breathing and coughing before she can go home, so continued prayers that she can take good, deep breathes (just like Annabelle!) are appreciated!! With God’s strength, she has defied all those doctors who said she would never make it without a trach though… so YEAH GOD!!!!
On the home base, everyone is doing well for the most part.
A prayer request though: Our dishwasher burst.. or a pipe did… or something. All I know is that they heard running water and finally realized nothing “should” be running, and found water gushing down the air vent next to the dishwasher on the floor. Have NO idea how long it had been running, and how far reaching the water spread under the floor (some of the carpet in the living room is damp… NEW carpet as of last fall I might add!)
I’m sure it’s fixable… I’m just worried about water damage/mold and that kind of stuff. Scott is going to look at it today, so please pray he can figure out what to do about it and that we don’t have to hire someone to come fix it ($$$$)! Our wonderful neighbor was nice to crawl under the house while Scott was at work tonight and cut out the duct work that was wet and tie it off so my mother-in-law could turn the air conditioner back on… since it is HOT today, and has agreed to, once all the water is cleaned up, come back and fix the duct work for us (he works in HVAC). *sigh* If it isn’t one thing, it’s another, but thank Jesus for kind neighbors!