Wrote Monday about how I was resting in Jesus….
Rest… what’s that again????
I had great plans for my post for today, but as always, Annabelle likes to change my plans.
First, had a not-so-fun phone call from her pulmonologist today.
We got final sleep study results, and they were not what he nor I anticipated. In fact, previously he’d told me that he thought they looked good but hadn’t seen the final report yet, so he’d call with that info.
Well, the call said that the results were virtually the same as they were in the Spring.
Annabelle doesn’t like to breathe well at night.
Tonsils and adenoids removal did not fix our problem, they just… changed it.
I don’t understand it all, but basically, before her large tonsils were obstructing air multiple times an hour from getting into her lungs.
But now, while nothing is obstructing it, and she’s still breathing at regular interviews, but she takes very shallow breaths so she dips her SAT’s several times per hour during these episodes.
So we are back on a 1/2 liter of oxygen for the foreseeable future.
There is a small chance that part of her problem was because she caught a bit of a cold the week before. Prior to that, she seemed, at home anyway, to be doing FABULOUS with her O2 sats.
And even with the cold, it’s been super mild and she’s been handling everything SO SO SO well besides the occasional cough.
We’ll do a home pulseox study in a few months to see if she’s any better, and if she is, will have another repeat sleep study. *sigh*
Speaking of colds though…
It isn’t quite so mild anymore. We’d put her on antibiotics given the length of the cough, but she finished them yesterday and today her cough is even worse and now she’s running 102 fever. And this evening, her work of breathing was not pretty. She calmed down a bit when she went to sleep though.
Writing this at 11:40 on Tuesday night… and right now she’s finally settled out. Cardiology was fine to let her stay home and rest as long as we’re careful and watch her.
So yes, it’s been a fun evening.
I know, I know, I know.
It’s probably just a cold. She’ll be fine. There’s no reason to freak out.
And I know, I know, I know.
It’s just oxygen at home. We’ve been there and done that. Pretty close to her whole life. This should not derail me.
And it won’t derail me… for more than a day or so anyway. And by that I mostly mean my diet… I ate a lot of chocolate today. *ahem*
Really need to learn go deal with setbacks without chocolate… I really really do!