Went to work earlier than normal today to try and get caught up a little.
Got a call around 11:30 saying that Annabelle had taken a turn for the worse, wasn’t breathing well, and they were headed back down to the ICU.
Her lactates were elevated (6.1… should be around 1) and she was severely desatting even on high oxygen.
They’ve given her fluid to bring her lactates down… but her lungs are wet which contributes to her desatting… so they also want to get fluid OFF of her. Go figure.
She is now in the ICU, on vapotherm again, and we’ve had to go up pretty high on our flow and are on a very high O2 percentage, and she’s still hugging her low 70’s in SATs (we want her to be 75 – 85.)
We have started her back on her Milrinone… an IV heart medicine that should help her heart function why she waits for a heart. Good side: This puts us on the highest priority heart transplant list. Bad side: This keeps us in the ICU until she is able to get her heart. There is a possibility we could go upstairs on it… but to be honest, at this point, it makes me nervous, and I really don’t think they’ll want to put her back upstairs with her history. I could be wrong though…
Which brings me to what I was GOING to blog about today:
But for today, please pray that Annabelle’s sats stabilize and that she can calm down. She’s still pretty grumpy and just not feeling well. Although while I’ve been typing this… she feel asleep, so is finally calm!
Got goosebumps when I read that line in purple. Praying…
Praying for Annabelle…
I am so happy to read Annabelle is on the transplant list. I almost jumped for joy when I read it.
I'm praying …hard!!!
Lots of prayers headed your way!!
I am going to amp up my prayers girl!!! There is nothing our God can't do. Believe. =)
I found your blog on Bowen's Heart and have been following Annabelle's condition for a couple months. I'm glad to hear she's on the transplant list and that now she is a top priority! Praying she gets a heart soon and feels better in the meantime! Blessings to you!
I still think about you all the time. I'm praying for your little girl. Miss "writing time" with you. And I imagine someday you will have so much to write about and help others by sharing your story. Your family is in my prayers!
I had read your "blessings" post yesterday but didn't have the time to reply until now. The one statement really struck me. That is the end statement:
"And even if all those things were taken from me tomorrow… I would still have God.
And God is enough."
I know it is true but I the same time I know that it must be difficult to think about the whole truth of it. It makes me think of Job. You must feel like Job at times to some degree. I don't mean this to be discouraging; in fact, just the opposite. I admire your faith on our God. May he keep you strong as you wait on Him and His timing.
We continue to pray for precious Annabelle. I'm sorry to hear that she is in the ICU but like you already pointed out, at least that moves her up on the list.
We will continue to pray for Annabelle, for God's strength and peace for you,as well as, some sleep. 🙂
My granddaughter, Emma, was born October 4, 2010, with a restricted atrial septum as well as HLHS. She recently became 1A on the heart transplant list too. If you'd like to read her story,you'll find Emma's story @:
God bless! We know how hard this all is!
I pray for Annabelle and her heart each time the Lord puts her on mine. Just lifted another one. <3
Just started following your blog about three weeks ago from Bowen's Heart. As I woke this morning I prayed for little Annabelle and your family, The Lord is gently holding all of you especially Annabelle's little heart current and future. God Bless.
Praying for your little one!
Hi Krista –
Praying for Princess Annabelle.
Praying for you and sweet Annabelle, Krista.
Your faith is beautiful.
May God be your strength and light.
New to your blog…
and I thought of the old kids song, "Jesus Loves the Little Children" as I read your post today. I'm thinking of you all and praying for her special
praying she gets a heart soon. and sorry she is in the ICU again.
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