A lot to tell since I updated last.
On Thursday, they decided to NOT do the placation surgery for her paralyzed diaphragm. Since she was off the vent, they felt that putting her through another surgery right now when there were a few other “things” we could try to get her through was unwise. We agreed to give it a week or two, and if we still couldn’t get better breathing, we would relook at the surgery.
We kept her on CPAP until Thursday, then switched her to Vapotherm, then nasal canula Friday morning. We also started her on a 3 day steroid burst to help her lungs. She is doing MUCH better, and her lungs are CLEAR for the first time since transplant. WOOHOO!!!
Given my slight nervous breakdown last week and Annabelle’s improvement… I decided to come home for a bit over the weekend. My kids needed my desperately, and I needed a break.
So mid-day Friday, I went home. I spent the evening taking a walk with my kiddos, playing ball out in the front yard, and watching a movie. I slept in my own bed for the first time since… I think… Christmas Eve. MUCH needed.
Saturday morning, we went to a couple garage sales for fun, then took Lacy to her softball game (which they WON!!! And Lacy got a hit TWICE and got the game ball at the end, for which I am SO VERY PROUD! GO LACY!!!!!)
We then went out to lunch, then I went home and cleaned out our garage with a little help from kids and a lot of help from my mother-in-law! I know it sounds stupid, but I haven’t worked on accomplishing something at home in a REALLY long time, so it felt really good!
I went back to the hospital Saturday night… and OH MY GOODNESS I needed to see my Annabelle! She was SO very cute and smiled when she saw me and I just loved on her a ton. She was doing SO SO SO good!
Unfortunately, I woke up Sunday morning at the Ronald McDonald House with a horrible sore throat and am now starting to sneeze. I HATE COLDS. I haven’t been sick the ENTIRE time that Annabelle has been in the hospital, so I should be thankful (and AM thankful), but I’m now back home since I can’t go see her like this. My heart is aching! I’m trying to just enjoy being with my other kiddos though. Just hope I can kick this stupid cold QUICKLY so I can go snuggle with my Annabelle again!!! Also gotta need steralize my house again so it will be germ free when we bring her HOME!
Which hopefully will be soon?!? She is on half of a liter of oxygen, and doing well. As soon as we get her OFF of oxygen, and she stays off, we can bring her HOME!
I LOVE that word! Home Home Home!!!
(stupid picture wouldn’t turn the right way… on my kiddos computer and it works different than mine! But she is sleeping sweetly on regular oxygen again! Mommy’s princess!!)