Well, Annabelle will be 3 weeks old later tonight. So Happy 3 week birthday to her!!!
How is she doing?
Fair. (I’m implementing a rating scale of bad, not great, fair, good, really good, and EXCELLENT now!)
Her blood pressure seems to be doing better (knock on wood since it’s been a HUGE struggle lately and they still need to back off one more medicine that is helping it.)
She woke up good for me this morning and was looking all around, which is REALLY good. Her color is pretty good as well!
On the not so great side…
They are planning on reinserting a drainage tube (had fallen out quite a few days ago) because her stomach cavity is bloated with too much fluid and they are afraid of it pushing on her lungs. It is already pushing on her actual stomach, as evidenced by the bile she threw up this morning.
They’ve also stopped her feeds and put her back on IV nutrition, which is another step backwards.
*sigh* I’m trying my best not to be frustrated. I KNOW ups and downs are normal, but it just feels like all the really good headway we’ve made over the last week is now all being reversed. I’ll be honest, I’m a bit (okay, quiet a bit) discouraged.
BUT. I am thankful she is doing as good as she is. I talk occasionally to other parents/grandparents and some of the sob stories are gut-wrenching. One little girl had to go immediately back on the ventilator because she didn’t take being off it at all, one little boy isn’t doing so well with his surgery so is on the heart transplant list, and another little girl is having a lot of struggles with her 2nd surgery (the one Annabelle will have in a few months.) I look at Annabelle and am SO thankful that she’s opening her eyes, that even though we have setbacks, that her surgery has gone technically well. And I DID get to hold her the other day, as brief as it was.
SO today, on Annabelle’s 3 week birthday, I’m going to try and concentrate on counting my blessings in spite of the not-so-great stuff.
Oh, and here are a few pictures of her from this morning with her little peepers open!! Oh, also notice that she graduated over the weekend to a BIG girl bed. 🙂 I like it MUCH better because I can lean over and snuggle a little bit and give her kisses easier. VERY important stuff!